Tuesday, June 30, 2020

Eye updates

I have been MIA for a few days. We’ve not really been doing much other than hanging at home and swimming, so I didn’t feel the need to post that on a daily basis. 
Anywho-we had another big eye appointment for Henry today. 
Some who may not know-it’ll be 2 years ago in August! I can’t believe it’s been almost two years now-holy moly!! Anyway-he got his very curious hands on a Bungee cord. He tried to hook two wagons together and it back fired and smacked him in the left eye. He immediately fell asleep had swelling and his eye was dilated and wouldn’t go down. I knew in my gut something terrible had happened. I took him to urgent care and they sent us via ambulance to Mercy. After a CT scan and an extensive (while knocked out) exam showed damage but we escaped being transferred to Iowa City. Couple of days later at his eye dr we found out his eye is forever dilated, he had lacerations, and he gave himself a cataract. He had the cataract removed a year ago in April. He was legally blind by then because it had taken over the center of his vision. He has a lens in place now and our long term goal is to get him as close to 20/20 vision in that eye as possible. Before the cataract was removed he was seeing somewhere in the realm of 20/250!! Not good. We patch at school because he can’t tell his teachers no-and that’s always been a battle. 

He has been SUCH a champ through all of this. Like mind blowing amazing. Today he proved no different. He had to have dilation drops in both eyes so once those kicked in he was quite frustrated. Totally understandable though. Picture is getting the drops in. 

Today’s updates were all GOOD news! I was nervous because we haven’t been wearing our glasses or patching at all since school closed. Dr. Bitner said today was one of his best appointments yet. His script has changed some so we have to get a new lens for his glasses but he’s still seeing somewhere around 20/40 and again stated that if he went in to take a drivers test he would pass! Always good to know things like that. 

I have to praise Dr. Bitner. He is beyond amazing. Henry loves him! The entire Wolfe Eye staff is just fantastic. I have never been uneducated or felt like we didn’t belong. The patience they have with Henry is just phenomenal too. 

So after we get our new script we will continue to try and wear these darn glasses all day, everyday and patch for a minimum of 2 hours a day. This is without a doubt the hardest part when school is out. Like I said-he knows he can’t tell his teachers no. 
Oh-also!! We don’t have to go every three months now! Now we will see Dr. B every six months! That’s huge!! 


So if you see Henry wearing his glasses, I don’t so much recommend telling him good job because he’s not a fan of them being praised. You can tell him how cool he looks or how he’s the best looking Henry in the whole world!! 


Until next time!! 

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